Hope that you all had a great Christmas!
Well I am on day 35 - post transplant, and Dr. Nash is moving in the direction of sending me home. My numbers are improving and pending any unexpected issues Matt and I should be leaving Denver and driving back to California the 3rd or the 4th. Woo hoo!
We had what they called the exit interview on Friday and was given instructions, test and the doctors I need to see when I get home. Looks like I will be continuing to need my blood taken weekly for a few months.
Also, because this is a study they have a follow up schedule to track the effectiveness of the transplant on the scleroderma. The first one is in 3 months, which would be in February for me, then in 6 months and I believe it continues for up to 2 years. Not sure how that will all work out with my insurance as I am only covered until March 14th under the transplant case. I know most people think because it's a study that the study takes care of the cost, but that is not the case.
Matt and I are so looking forward to returning home. While we've been away, our dear friends, Joe and Karen have been looking over the house and keeping everything going. We are so grateful to them. It's one thing when you go away for a weekend or week - but I am talking 3 months... true kindness!
Except for going to the clinic, I have stayed in the apartment to avoid any contact with flu.. etc. My energy level is low but not that bad. Dr Nash tells me I will have good days and maybe not so good, but overtime I should start to feel stronger. Patience.
I am attaching a few pictures that Matt took while I was in the hospital for those who might like go see a bit of the process.
Wishing you all a Happy and Safe New Year, most importantly -- Wishing you all Good Health!
God Bless you!
xo
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| Second Stem Cell collection. |
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| Monica - NP and Nurse Nancy |
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| Container that held my stem cells |
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| Monica verifying they belong to me. Had 7 bags. |
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| November 26, 2012 injecting me with my stem cells |
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| After infusion - 1 |
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| After infusion 2 |
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| On the mend |
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| Maria - she came in everyday to clean the room a sweet, sweet lady |
I am sure there are many things you are looking forward to as you get ready to come HOME!!! Your own bed, the green Chino "Hills" and especially your dear friend, Karen. She has missed you soooo much! What a great reunion that will be. We will all be praying 2013 will bring you many days of improved health and a sense of well being, Debbie!!
ReplyDeleteForgot to sign! Sue Nelson
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