Moving Forward

Well my Dear and wonderful friends ...
I truly apologize for not posting sooner ... however I've been thinking of you all everyday and I know all your love and support has brought me this far.  I also know that the Lord has heard all your prayers.  Thank you!

After three weeks which is pretty much a blur to me the Doc gave Matt and I the OK to go back to the apartment.   As much as I wanted out of the hospital, I will admit I was very apprehensive about leaving as I was being monitor 24/7 and now I am going to be away from that with an overwhelming amount of instructions, outpatient immunosuppressed  diet guidelines, loads of meds each day to take, and knowing the not so obvious signs of the body to pay attention to, that may indicate you could have an infection and call the doc.

This part of the treatment is leaving the hospital and being monitored as an out patient for a few weeks. I am scheduled 3 times a week to go to the clinic to have blood test and be examined.  If the testing continues to improve  and I don't develop any infection or issues they will send me home with instructions on the appointments I will need to make with doctors at home and continued blood test.

I've been out of the hospital for 7 days now diligently following all the care giving instructions, thanks to my dear husband.  Last visit to the clinic continues to show that I am on an up hill recovery from treatment.  It's looking good that we could be headed home in a few weeks.  Then with time, did I benefit from the stem cell transplant -  keeping the scleroderma from progressing so quickly for a long period of time.

If you knew how long it took me to put this note together you'd laugh.  Hope it makes sense!

All is good and God's got this.

xo